Saturday, May 21, 2016

What do early onset scoliosis (EOS) and adolescent idiopathic scoliosis (AIS) patients really think about scoliosis surgery and recovery? A brother and sister create their own interview video!

A few months ago, we had the opportunity to care for a brother and sister, Ava and Luca, who had progressive adolescent idiopathic scoliosis (AIS) and early onset scoliosis (EOS) -- both of whom had rapidly progressive curves over 50 degrees and growing.   This morning I received an email from their parents that the two of them actually created their own movie, interviewing each other about their experience.  We'll see what you think, but I think the two of them did a great job putting this together with their parents.  Understanding scoliosis and scoliosis treatment through the eyes of the patient and family is super helpful, and this family did a really good job sharing their amazing journey through the preoperative, surgical, and recovery phases of care.  They share about their concerns before surgery, and their postoperative recovery, including when they were able to go back to school, and return to sports, dance and gymnastics.  They share about their improved posture, preop and postop pain and much more.

Strong work Ava and Luca, and your amazing Mom and Dad!  You guys did a wonderful job documenting your journey to help other children and adolescents, and their parents, and also to thank the people who helped care for you at WakeMed Children's Hospital in Raleigh, NC and Hey Clinic.

Lloyd Hey, MD MS
Hey Clinic for Scoliosis and Spine Surgery

Sunday, February 7, 2016

Can my daughter dance freely after scoliosis surgery?

Ava is a 13 yo young lady from Long Island, NY who had scoliosis surgery along with her younger brother in November 2015 with Dr. Lloyd Hey (Hey Clinic for Scoliosis and Spine Surgery), in Raleigh, NC.  Her mom Marisa shared a recent video of Ava at dance class, showing how freely she can move on the dance floor after instrumentation and fusion correction of her scoliosis.  Her younger brother is back to full activity as well from his thoracolumbar scoliosis surgery.  Ava and her mom and dad allowed us to share this video and her before and after X-Rays with all of you!  Go Ava!!!!

Thursday, December 10, 2015

Thank You Note from 15 yo Susan 6 weeks postop adolescent idiopathic scoliosis

Saw 15 yo Susan back for her 6 week postop visit, who made me a wonderful home-made thank you car that I share below.

Dr. Hey,
Thank you for all the help you have done.  After the surgery, I know i can do the things I love to do without having limits or being in pain.  Throughout the day of my surgery, I was scared and so was my family.  But when you said a prayer for me and my family, me and my family knew everything was going to be just fine.  Thank you so much!!  You made a true difference in my life!!  And for that I want to thank you.    Love, Susan"

Dr. Lloyd Hey
Hey Clinic for Scoliosis and Spine Surgery

Thursday, November 5, 2015

24 yo Vanessa with severe scoliosis and one lung looking well and feeling well at 5 months postop

We saw Vanessa and her husband back in clinic today, and she was absolutely radiant!  We've shared her story on a previous blog with her permission, and again today with he permission.    She was sent to me by Dr. Chris Brown, a wonderful Duke spine surgeon who I have known for many years.  Vanessa was quite a challenge:  a severe scoliosis, and missing one lung from birth, which is not a good combination for long-term cardio-pulmonary health, and even for perioperative risk.   She had done very well, however, and I am thankful that she now able to enjoy better quality of life with her 3 yo and husband, better posture and appearance, and also better long-term outlook for her cardio-pulmonary health!  Vanessa and her husband share their updated story on YouTube video and transcribed text below.
Dr. Lloyd Hey -- Hey Clinic for Scoliosis and SpineSurgery

“I am Vanessa. I am originally from Fayetteville. I have been seen by Dr. Hey. My surgery was this past June of 2015. I suffered from scoliosis since I was about 12 years old and it was ongoing pain, literally. I am really grateful now because Dr. Hey has fixed my spine. I feel prettier now. I used to grow my hair really long to hide my hump and now I cut it short, so I’m happy about that. I have a 3 year old that I can keep up with now. I took him trick or treating recently and I was excited to look at the pictures because I didn’t have any hump and I was able to last all night long. It was great! So I am very thankful for Dr. Hey and his staff and everybody at Duke Raleigh who took care of me. I’m very grateful. I feel beautiful. Much more beautiful  than I did before. Life is great and is going great now.” -Vanessa

“I would just like to thank Dr. Hey and everybody at the Hey Clinic and Duke Raleigh medical center. Just for getting my wife to where she wanted to be, where she is pain free. She is taller now. Pain free everyday too. A lot happier and her morale is a 100 times better.” –Vanessa’s husband

Vanessa's new back posture, incision looks good
Vanessa's very good side posture postop

Wednesday, September 23, 2015

Can I regain quality of life after flat back syndrome kyphosis and scoliosis surgery? Email received today from Sheila, South Carolina shares.

Sheila had severe flatback syndrome, spinal stenosis, and severe kyphotic posture combined with severe L5S1 anterolisthesis below a previous Harrington Rod fusion done many years ago for her adolescent idiopathic scoliosis.  Her pre and postop posture is shown on previous blog post.    She sent me this email earlier this am, with her latest accomplishment.  --- Thanks for sharing, Sheila!  You go, girl!  Dr. Hey

"Hello!  Had to share my weekend with you. This is our bridge here in Beaufort going to Lady's island and I walked it both Saturday and Sunday this past weekend. I made it all the way to the other side and then back again. It has a gradual incline to the top, and my much younger friend ( 23 years old) who walked with me, was very concerned about the incline.  She said if I wanted to, we could only go halfway and come back.  Nope. I said I'm walking the whole bridge and back. And we did. She was amazed. And even more amazed that I did it again the next day. It's about 3/4 of a mile each way. Not too shabby for someone who is recovering from spine revision surgery.  LOL I haven't been able to walk this bridge in over 2 years. I was in too much pain from being bent over to be able to do it. My husband reminded me I couldn't make it from the parking garage to your office the day I came to see you. We had to stop several times. When I first approached the bridge, I stood at the bottom and looked up and said to myself, can I do this?  I was just hoping to make the walk up to the top and then come back down to my car.  I made it to the top, stood and enjoyed the view and then started  going down the other way.   And I made the climb twice!  My hubby was worried. He said only go half way.  When I came back and told him I did the whole bridge, he cried. And then I cried. And we remembered that day  before surgery,  when I couldn't walk to Dennys restaurant from our hotel. I couldn't do it. And next month,  we will welcome a new grandbaby and this grandma will be able to stand up straight beside his crib. I am so very happy that I decided to have this surgery. I wished I had sooner. But I was scared.  And by the way, anyone who is worried about their clothes afterwards in warmer weather because of the scar, don't worry at all. You can wear anything you want.  My scar looks great.  Went right over the old one. That was a concern to me cause before I was in a body cast for 9 months years ago with the first surgery and didn't worry really about what it would look like.  This time I did. I just want others to know that I'm not sure if it was possible for anyone to have been more scared than I was. And I did great.  And had a great outcome. This surgery now allows me to walk without pain, stand without bending my knees constantly,  stand straight and not be bent over, stand at my sink and do dishes,  stand at my stove and cook, go to events and not be constantly looking ahead for a bench to sit on. And so much more. Please share my story with those who are trying to decide to have revision surgery. They won't regret it.  I never dreamed I would be walking this bridge EVER again in my life.  Thank you again and I'll see you in November. Sincerely,  Sheila C. "

Thanks again for sharing Sheila!!  Keep it up!
Lloyd A. Hey, MD MS -- Hey Clinic for Scoliosis and Spine Surgery