She is anxious about considering surgery, since she had a horrible experience as a teenager with surgery and a body cast for 9 months -- almost like a PTSD problem for her.
We are going to try some conservative treatments, but epidural injection already did not help, since stenosis is just so tight. If the conservative treatment fails, there is hope for her with surgery, and we could even do it in a less invasive / minimally invasive way without having to go in through her abdomen either anteriorly or laterally.
She asked if she could talk to some of my previous Harrington rod extension fusion patients, and I seemed to remember we had several patients on our YouTube channel as a good next step. As you can see from the long list, we have had a lot of experience helping not just children and adolescents, but many adults with scoliosis and kyphosis, including those needing revision extension work. We also do have previous patients, who in certain cases we connect with our patients considering surgery, which is our "Surgery Buddy System." But, our Blog, searching on keywords, as well as the YouTube channel is a great place to start.
Maybe some of these patient stories will help some of you as well?
Lloyd A. Hey, MD MS
Hey Clinic for Scoliosis and Spine Surgery
http://www.heyclinic.com
Here are a few YouTube links for you:
https://www.youtube.com/watch? v=C1_TIjrnMeo Crystal J, had Harrington Rod extension fusion. Could be good buddy.
https://www.youtube.com/watch? v=7RcIX7j8mXw Cheryl R, in mid 40-'s. Had Harrington Rod as teen, and then extension fusion. Good possible buddy.
https://www.youtube.com/watch? v=lcpM1oA3RQ8 Elizabeth was 55, had Harrington rod fusion as teen, then had extension fusion 5 weeks before video. Good possible buddy
https://www.youtube.com/watch? v=LTXZxKRLkJc Charlene J - had previous Harrington Rod surgery. Might be a good "buddy"
https://www.youtube.com/watch? v=wWwv779T8zQ -- Lisa may be a good one for you to talk to.
https://www.youtube.com/watch? v=prOd5Ko6oaw 55 yo woman 6 weeks postop from thoracolumbar iliac wing fusion for severe scoliosis
https://www.youtube.com/watch? v=ZA9Py_pB5J0 Had flatback syndrome, fixed.
https://www.youtube.com/watch? v=dqZFkS3_FH8 Had severe flatback syndrome with old Harrington rod fusion, treated anterior/posterior
https://www.youtube.com/watch? v=FLT2CPN2rZo -- Patricia E -- also had severe scoliosis, but no Harrington rod.
https://www.youtube.com/watch? v=g9n2WPpaALU -- Jeannette - from Wilmington, NC - also might be a good buddy.
https://www.youtube.com/watch? v=8O6pV8DmdVg -- Connie a year postop -- doing well, training for half marathon.
https://www.youtube.com/watch? v=aqicY09vv5w Pam - 60 yo- severe scoliosis, progressive.
https://www.youtube.com/watch? v=SsPEWJC4COg Jeri from Franklin, NC 6 hours away, had a very severe scoliosis
https://www.youtube.com/watch? v=zhf5idBbvKQ Elizabeth 1 year postop from severe scoliosis correction
https://www.youtube.com/watch? v=89DY8J_jMVE One year postop, 47 yo with severe scoliosis
https://www.youtube.com/watch? v=NOPtR5VQAhY John from Florida, 51, had severe kyphoscoliosis and obesity. Now doing very well.
https://www.youtube.com/watch? v=Y7P6J5t6Bmc 60 yo Andrea had severe scoliosis and very poor quality of life.
https://www.youtube.com/watch? v=GNESt4QCIk8 Elva had anterior/posterior extension fusion, and tells about her recovery
https://www.youtube.com/watch? v=ZR1iIthdUrI Debbie had horrible preop pain, with severe scoliosis
https://www.youtube.com/watch? v=Had-sWriicM Andrea, 60yo had severe scoliosis, very poor quality of life
https://www.youtube.com/ playlist?list=PLuKdsL3fqSh- BWSGZS3NPEK07NpfmdxLY Collection of adult surgeries at Hey Clinic
Here are some Blog posts about Harrington Rod extension fusions, just searching my blog for word "harrington"
Hope these resources help!
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